Together, we can make a significant impact on the lives of those affected by thalassemia. Join us in our mission to educate, support, and drive change.
Join Us in the Fight Against Thalassemia
We need your support
Become a part to change the world
Join us in empowering children affected by thalassemia. Your support provides vital care and resources, offering them a chance at healthier, happier lives. Take action today to make a difference tomorrow.
Empower Lives, Take Action
We need your support
Years of service
Patients cured
Awareness Events
Families Supported
- About us
Parents Association – Thalassaemic Unit Trust (PATUT) Mumbai
Parents Association – Thalassaemic Unit was formed on February 22, 1986 with 34 parents of the Thalassaemic children and some honorary workers who were interested in rendering service to the children. Late Mrs. Leela Moolgaokar was the Founder Hon. President. Shri Pankaj Udhas is the present Hon. President and Shri Thakorebhai Desai the founder Hon. Vice President.
The Thalassemic Unit, at St.Geoge’s hospital was sanctioned by the state government in 1980, and there were four children who took blood transfusion in 1982.
Support Our Mission to Fight Thalassemia
Together, we can make a difference. Join us in our relentless effort to combat thalassemia. Your support enables us to:
- Provide Essential Care
- Host Screening Camps
- Spread Awareness
- Family Support
Your contribution offers life-saving treatments
Help raise awareness and support those in need
- Our Thalassemia Action
What We Do
Our NGO, PATUT, has adopted 25 thalassemia major patients from St. George’s Hospital, providing them with free medication, iron chelation, and comprehensive care. We work closely with hospital staff and parents to address any issues and enhance patient care. Our support includes regular group discussions with medical professionals and families to ensure the best possible outcomes for our patients.
In collaboration with Novartis Pharma, we publish pictorial journals to raise public awareness about thalassemia. These journals are distributed to government setups, health posts, primary health centers, and public libraries to educate the community. Our publications cover essential information on the causes, symptoms, and management of thalassemia, helping to prevent the spread of the disease through informed choices.
We organize mini-medical camps with experts in onco-hematology and endocrinology at L.T.M.G. Sion Hospital. These camps provide patients with expert consultations and regularize their treatment plans. Additionally, we conduct comprehensive health profiles for patients at N.M. Medical Centre and C.B. Patel Research Centre twice a year, ensuring they receive holistic care.
We arrange blood donation drives at various locations to ensure a steady supply of blood for thalassemia major patients. These drives are crucial in supporting the continuous need for blood transfusions, which are vital for the survival of thalassemia patients. We collaborate with colleges, corporate houses, and housing societies to maximize participation and impact.
Our NGO provides financial aid for bone marrow transplant surgeries for children in need. We have supported numerous patients by covering the costs of their surgeries and post-operative care. This financial assistance has made life-saving treatments accessible to many families who otherwise could not afford them, giving children a chance at a healthier life.
We conduct thalassemia awareness and detection camps at colleges, organizations, corporate houses, and community mandals. These camps help identify individuals with thalassemia and educate the public on the importance of early diagnosis. By spreading awareness, we aim to reduce the incidence of thalassemia and ensure timely treatment for those affected.
Your Support Matters
Gift a Child Their Childhood
Every child deserves a chance to live a healthy and joyful life. Thalassemia can rob children of their childhood, but with your support, we can change that. Join us in our mission to provide life-saving treatments and support for children affected by thalassemia.
FAQs
Thalassemia is a genetic blood disorder causing anemia from abnormal hemoglobin. Types include alpha and beta thalassemia, treated with transfusions and care.
Thalassemia causes anemia because the mutations in the genes responsible for producing hemoglobin result in reduced or abnormal hemoglobin production. Hemoglobin is crucial for red blood cells to carry oxygen from the lungs to the rest of the body. When hemoglobin production is impaired, red blood cells cannot function effectively, leading to anemia.
Treatment options for thalassemia include regular blood transfusions to manage anemia, iron chelation therapy to reduce iron overload, and in some cases, bone marrow transplant for a potential cure.
Important points to remember
Doing Blood test for Thalassaemia Minor is very important for:
- Youngsters who are not married: It is crucial to know your Thalassaemia status before getting married to ensure informed family planning.
- Those who are married and planning to have a child: Even if you have already had children, testing is essential before planning more children to understand the genetic risk.
- Expectant parents:Knowing your Thalassaemia status informs decisions on prenatal care and genetic counseling for family planning.
Every child battling thalassemia is a hero,
showing incredible bravery and determination in their journey.
- Transforming Lives
Featured Causes
Our featured causes focus on the most critical areas where your support can make a significant impact. By directing resources to these specific initiatives, we aim to improve the quality of life for children affected by thalassemia and work towards a future free from this disease. Here are some of our key projects:
Medical Care for Children
Awareness and Education Programs
Family Counseling and Support
Healthcare Policy Advocacy
Support for Out-of-Town Patients
Our Impact in Pictures
See how we’re making a difference in the lives of children with thalassemia through our events and initiatives.
- Join Our Mission
Events
Health Checkup
Every child deserves a healthy, joyful life. Thalassemia can take that away, but with your support, we can change that. Join us in providing life-saving treatments and support for children affected by thalassemia.
Thalassaemia Screening Camp
In September 2014, we held a thalassaemia screening camp at the South Region Headquarters with Add’l Commissioner Mumbai Police Krishna Prakash and Trustee Rashmi Shah. The event focused on raising awareness and providing early detection services for thalassaemia.
Get Involved and Make a Difference
Join us in our mission to fight thalassemia and improve the lives of those affected. Whether you choose to donate, volunteer, or spread awareness, your support is crucial in making a real impact.
